Home - Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

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Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

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Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

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Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

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Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: November 4, 2024

Porch Nite: Open Conversation

A Family Support Group for moms in the Duchenne community to connect, form relationships, share knowledge, and more.

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Event Date: November 7, 2024

Community Webinar: Fat Embolism Syndrome

Tune in to hear from Dr. Han Phan and Perlita Hains on fat embolism syndrome in individuals living with Duchenne muscular dystrophy.

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Event Date: November 8, 2024

Porch Nite: Ingleside, IL

Join fellow moms and grandmothers from the Duchenne community at our November in-person Porch Nite weekend!

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Duchenne News

October 30, 2024

PTC Therapeutics Announces FDA Acceptance of Translarna™ NDA Resubmission

PTC Therapeutics announced the U.S. Food and Drug Administration (FDA) has accepted for review the resubmission of the New Drug Application for Translarna™.

September 30, 2024

Wave Life Sciences Announces Positive Interim Data from FORWARD-53 Clinical Trial Evaluating WVE-N531 in Boys with Duchenne Muscular Dystrophy Amenable to Exon 53 Skipping

Press release and Community Letter updates from Wave Life Sciences.

September 4, 2024

PepGen Mid Year 2024 Advocacy Newsletter

Recent Blog Posts

October 10, 2024

Kentucky Family Settles Into Accessible Travels Through Jett Giving Fund

Daniel Brumer and his grandmother feel a new sense of independence and joy thanks to Jett Giving Fund.

October 10, 2024

Accessible Wheels for Arizona Family With Help From Jett Foundation

Cole Hembree is excited to join his family on outings and start camping again.

October 7, 2024

Swinging Through A Momentous Jett Golf Classic Fundraiser

Participants and supporters help raise vital funds toward Jett programs for Duchenne families.

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.